Nicole had another long day. She is still in a lot of pain and her Mucositis is still a huge struggle for her. The NP has been very concerned about Nicole. Her blood oxygen level keeps de-saturating and she sometimes struggles a little to breathe. She had an x-ray and ran a bunch of tests on her. So far all has come back negative for any infection. We are still waiting on some lab work on her blood cultures. She has spiked a fever tonight. They have had some more antibiotics to help fight or prevent anything else she might be fighting besides the mucositis. They have also had the PICU doctors come and check her in case she needs to go down to PICU.
Last night Nicole needed some IVIG. Today she also received platelets and blood. Hopefully that will help her feel better.
Today been another long day. I have been reminded that the Lord is mindful of us. One of the moms messaged me and asked if everything was ok because she noticed the x-ray machine coming in Nicole's room. She sent some essential oils to our room to help us. Another sweet dad asked if I wanted dessert from Chilis. Of course I said yes!
As hard as this journey is I have met some of the most amazing families. The parents of the children here at Primaries are some of my heros.
Doctrine and Covenants 8:15 ... succor the weak, lift up the hands which hang down, and strengthen the feeble knees. Even when the families here are going through their own struggles they try to help and strengthen others.
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