100 Days Post-transplant :)

Today is Nicole's 100 day post-transplant.  It is the day we have been waiting for in hope that we would be able to back home to Hyrum.  However, with the challenges of her platelets, we are still here in West Valley.  We don't know when we will be able to go home to Hyrum.  The Bone Marrow Team is just saying sometime within the next month.  Nicole did have another clinic visit today (9-26-14) and it did include another platelet transfusion.  Her platelets were at 10K. 

The team has decided to try another route with her platelets. They are going to start giving her an IV infusion of Rituxan.  We started this today.  Her first infusion should have taken 10 hours but that would have gotten me back to my sister's house around 1:00 A.M.  They decided to try to give it to Nicole at the 2nd infusion rate, which only took around 5 hours  :)  I got back to my sister's at 8:00 P.M. (much better than 1:00 A.M.).  It is discouraging that we do not know when we will be able to be together as a family in Hyrum.  Today during clinic the scripture in Mosiah 4:27 came to mind: "And see that all these things are done in wisdom and order; for it is not requisite that a man should run faster than he has strength. And again, it is expedient that he should be diligent, that thereby he might win the prize; therefore, all things must be done in order."  The Lord is mindful of Nicole and our family.  All things must be in "wisdom and order" if we are to "win the prize". 

Nicole wouldn't let me take her picture.  I decided that Kermie has also done
his 100 days right along with Nicole and that he deserved a picture too  :)

After Kermit's cooperation, Nicole finally let me take
a picture but she refused to look at the camera.

Here is Nicole playing at clinic.  Again she refuses to look at
the camera.  I think she has a little rebellious streak in her  :)